Balancing LEMS Self-Care: The Gift I Give Myself
Balancing life with Lambert-Eaton myasthenic syndrome (LEMS) management can already be a challenge without adding the stresses of holiday events, traveling, and end-of-year commitments. It’s important to maintain self-care practices during this busy season, so…
What I Wish Someone Had Told Me After My LEMS Diagnosis
I knew I would be fatigued, but I had read that I would be able to continue with my activities after a short rest. What I later learned is that after that short rest, the…
Tips for Traveling with LEMS
Bustling airports and busy highways are hallmarks of the holiday season. But when you have LEMS, travel can be intimidating. We asked Ambassador Jamie to share her best tips and tricks for making your next…
Planning for the Future
“No hard feelings if you need to walk away,” I said to my partner. This wasn’t an easy conversation to have, but I was being truly honest. See, at the time, I had just been…
How I Make Life with LEMS Work for Me
Those who have been affected by LEMS know that life doesn’t always turn out the way they thought it would. Being diagnosed with a rare disease can alter future goals, hobbies, and relationships. But even…