Finding a Specialist
Finding the right doctor is the key to unlocking your diagnosis
Your primary care physician is the ideal healthcare partner to help you maintain your general health. Their role is to provide exams, treat minor illnesses, and refer you to specialists when severe illness or symptoms appear.
Symptoms that include debilitating muscle weakness require the expertise of a physician trained in neuromuscular medicine—the study of nerves, muscles, and how they interact.
Specialists who can help
Specialists who can diagnose and treat Lambert-Eaton myasthenic syndrome (LEMS)
Physicians who specialize in conditions that affect the nervous system, including the brain, the spinal cord, and all the nerves in the body.
Physicians who specialize in conditions that affect the neuromuscular system, including disorders of the neuromuscular junction.
Physicians who specialize in physical medicine and the rehabilitation of medical conditions affecting the brain, spinal cord, bones, joints, nerves, and muscles.
Preparing to talk with a LEMS specialist
Before meeting with the doctor, write down notes that include a brief but thorough description of your current health status. Be sure to include:
Specific information about your symptoms and how they affect your daily activities
A timeline of your illness: when symptoms first appeared, how they progressed, and whether they’ve fluctuated, gotten better, or gotten worse
Details about previous treatments you’ve received or used, including prescription drugs, over-the-counter remedies, and any physical therapy or rehab
You should also prepare a list of any questions you may have about the tests or treatments that your doctor may recommend. The next section offers information that can help you have a productive conversation.
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