Betty Ann, Living With LEMS
Rich, Living With LEMS
Real Patient Stories
Learn more about LEMS from those living it every day
Watch as Rich discusses his experiences living with LEMS and how his symptoms affected his job as a police dispatcher. Learn how his LEMS diagnosis helped uncover hidden cancer, ultimately saving his life.
LEMS at 81
Betty Ann’s Story
Meet Betty Ann, a former dancer who was sidelined by the mysterious symptoms of LEMS in her 60s. Listen as she describes her long diagnostic journey and how—through the power of her own research, self-advocacy, and persistence—she found the diagnosis that got her back on her feet again.
Jamie talks about the importance of having a positive approach when it comes to living with LEMS. She admits that LEMS was “really hard in the beginning,” but can now see a future where she can be more independent.
THERE AND BACK
Celsa describes the onset of her LEMS symptoms and her journey to diagnosis. Her first signs were disrupted vision followed by bouts of fatigue that kept her in bed all day. Difficulty walking followed, but it was not until she was hospitalized with breathing difficulties that her LEMS was diagnosed. Fortunately, her doctors knew to look for an underlying tumor and were able to diagnose lung cancer in time to save her life. With therapy, her LEMS symptoms have improved.
MOM WITH LEMS
Before LEMS, Emily was a healthy, active mom of a 2½-year-old daughter. At the age of 33 she began having symptoms that included leg heaviness, trouble rising from a chair, and problems with her gait. In this video, Emily describes her long journey to diagnosis and effective treatment, and how that process has made her thankful for the life she has today.
More content is on the way for LEMS Aware, including video stories with real patients who are living and thriving with LEMS. Sign up to stay informed about new additions to the website as well as other resources that become available.