Betty Ann, Living With LEMS
Rich, Living With LEMS

Real Patient Stories

Learn more about LEMS from those living it every day

LEMS transformation

Tescha’s Story

Tescha talks about how LEMS has made her life both more challenging and more fulfilling. “The person I was before my diagnosis and the person I am now are very different. My outlook is really good.”

LEMS Detective

Rich’s Story

Watch as Rich discusses his experiences living with LEMS and how his symptoms affected his job as a police dispatcher. Learn how his LEMS diagnosis helped uncover hidden cancer, ultimately saving his life.

LEMS at 81

Betty Ann’s Story

Meet Betty Ann, a former dancer who was sidelined by the mysterious symptoms of LEMS in her 60s. Listen as she describes her long diagnostic journey and how—through the power of her own research, self-advocacy, and persistence—she found the diagnosis that got her back on her feet again.


Jamie’s Story

Jamie talks about the importance of having a positive approach when it comes to living with LEMS. She admits that LEMS was “really hard in the beginning,” but can now see a future where she can be more independent.


Emily’s Story

Before LEMS, Emily was a healthy, active mom of a 2½-year-old daughter. At the age of 33 she began having symptoms that included leg heaviness, trouble rising from a chair, and problems with her gait. In this video, Emily describes her long journey to diagnosis and effective treatment, and how that process has made her thankful for the life she has today.


Living with LEMS yourself?

Tell us what you’ve learned.

If the patient stories above have given you any insight or comfort, then you know how powerful words can be. Whether you feel like you’ve found some important answers or are still struggling with questions, your insights are important and may be helpful to other patients on their LEMS treatment journey.

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