Podcasts
Conversations for and from the LEMS community
The LEMS Aware Podcast is dedicated to those affected by Lambert-Eaton myasthenic syndrome, a rare neuromuscular disorder. Whether you’re a patient or caregiver, rare disease can be isolating. But you’re not alone! Join us as we come together to discuss the challenges of living with LEMS, share the stories of our success, and raise awareness of LEMS to the world. Listen here or wherever you get your podcasts!
LEMS Aware | Ep. 1
You Have A Friend in LEMS
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New symptoms. Invisibility. Isolation. Being diagnosed as Rare. Advocacy. Building connections. Ashley Gregory and Price Wooldridge walk us through their journeys living with LEMS. Ashley was starting a career, whereas Price held years of broad experience when their diagnostic odysseys began. They share the similar challenges they faced and how they have helped each other through them, despite their difference in age and stages in life. Join us as we discuss the importance of finding a name for their symptoms and how having a community to reach out to has made all the difference in creating their new normal. LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey—searching for the right doctor, the right diagnosis, or the right treatment—this site can guide you to that next milestone.
LEMS Aware
Introducing the LEMS Aware Podcast
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Welcome to the LEMS Aware Podcast. We’ve been waiting for you. My name is Kevin Freiert, and I will be your host. Lambert-Eaton myasthenic syndrome, also known as LEMS, is a rare neuromuscular disease that can have a profound effect on a person’s mobility and quality of life. LEMS disrupts the communication between nerves and muscles. LEMS typically causes severe debilitating and progressive weakness in the upper legs and hips, making it difficult for a person to walk or even stand. LEMS can also weaken the muscles of the upper arms and shoulders, making self-care and independence difficult. Some people with LEMS also experience other symptoms, such as dry mouth or problems with vision. LEMS Aware was created to deliver relevant information, resources, and connections to patients and caregivers who may be living with or affected by LEMS. The LEMS Aware Podcast lets you hear from people in the LEMS community on topics that matter to you.